Monday, March 1, 2010
hard day.....
well. friday was quite a rough day. :( thursday we went to our regular monthly appointment at mckay dee and the doctor said she is growing PERFECT and looks good. she is passing her non stress tests as well which is GREAT! so we left there very happy and upbeat about things. then came our monthly appointment at primary childrens on friday. :( i am not a very big fan of these appointments just because i'm a wuss and don't like to lay flat on my back for an hour and a half while they do an echo on her heart. ya. i'm a wuss. anyways....after an hour and a half of getting pics of her heart we go into a room so the specialist can tell us what she saw/didn't see. well, from the very first appointment that we went to down there they said that one of the MAIN things they would be looking for over time would be the vessels that go from her heart to her lungs. this is quite major when it comes to the surgery(ies) that they will have to do. well, we were told that unfortunately these vessels were not found..... :( as soon as i heard this i just LOST it. as the doctor continues talking i am basically not hearing a word that she is saying. there were SO many things running through my mind at this point. i guess during this time we were also told that one of her valves should basically be two and it's one. and she continued talking....me crying.... then she says....do you have any other questions? i didn't even ATTEMPT to ask because it wouldn't come out. i had SO many questions but didn't want to hear the answers.... then she left the room and the social worker and RN sat there for a minute. then the RN began to talk....and all i heard from her was...."i know it's hard but don't plan on holding your baby once she is born. they will probably just take her right out." ........then came the tears....again......... what mother wants to hear that she can not hold or even possibly see this little angel that she has been carrying for the last 9 months?!?! that right there was my breaking point....it HONESTLY just KILLS me to even THINK about this. but i guess this is something that we have to deal with. if me not seeing her means that she gets the care she needs then i am more than willing to sacrafice that. it is one of the hardest things i will have to go through.... there will definately be a waterfall of emotions once she is here.... we are just trying to be positive. it's hard. but we have to do it. i think now that we are only 6 weeks away it has hit us a little harder. but like i said....we are praying and hoping for the BEST for our baby girl. it's hard to say but heavenly father knows what is best for us and only gives us what we can handle. this is a trial that we are suppose to go through. and we will. .......well sorry for the story book! i just thought i'd keep you updated on what is going on..... and i will try to continue to do so! hope everyone is doing well!
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8 comments:
We are keeping you AND your little girl in our thoughts and prayers!
She is going to be a beautiful baby!!
You are right, knowing that if you can't hold her, at least you can be sure that she is getting the care that she will need!
When my older sister had her first baby girl, she didn't get to hold her either. They jetted her off into a helicopter for Primary Children's. This baby girl is now 21 in college and loving life. Thank goodness for modern technology and medicine! I know this is hard and I feel for you. Hang in there!
I'm just sitting here thinking about how much I look up to you. Seriously, you are one neat lady. Your sweet baby girl is lucky to have such an amazing mama who loves her the way you do. You are in our thoughts more than you probably realize. And so is that precious baby girl.
We will keep you in our prayers. The great thing is that technology now days is absolutely amazing and they are able to do things that were never possible before. When my little guy was born I didn't get to see him long either...they took him to the NICU and it was days before I actually got to hold and love him the way you always imagined. Our thoughts are with you.
Oh wow girl!! (I need to check your blog more often...lol even though you rarely post)
Im so sorry! We are still praying fr you guys and keeping our fingers crossed! Youre right though, it will work out how its supposed to! Im so glad you guys are so positive (even if it doesn hurt!) and strong! Hang in there!
Shae we're so sorry for all that you two and your little girl are having to go through!! You are definitely in our prayers, we love you guys!
I went back to one of the comments you had left on Mason's blog to find your blog.......I wanted to tell both of you that you are in our thoughts and prayers at this time. We truly know the emotions and understand heart ache from our having or own "heart" baby, but I do also know Heavenly Father has held our hands all the way through this journey and he will hold yours too.
With Love, Summer (Mason's Mommy)
Hi, You don't know me, but Summer (Mason's mommy) told me about your family. It sounds like your little one has a similar diagnosis to what my son has (as far as the heterotaxy at least!) Please feel free to check out our blog or contact me if you have any questions!
Alli
mom to Grant (HLHS, heterotaxy, and a few other things too!)
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